Autism
I am a Board Certified Behaviour Analyst (BCBA) and a Registered Autism Service Provider (RASP) i.e., I am a Registered Autism Service Provider (RASP) i.e., I am on the RASP list which is maintained by the British Columbia Ministry for Children and Family Development (MCFD), which is now known as the Autism Information Services of British Columbia (AIS BC). Parents who have a child diagnosed with autism (under age 6) in BC typically hire a behaviour consultant on the RASP list, to write their child’s behaviour plan of intervention and supervise their program. Government funding is available for these professional services (Autism Funding Unit). For more information and to view my online RASP profile visit: http://autisminfo.gov.bc.ca/rasp/search/
I also provide services for individuals (six and older) diagnosed with autism.
Process
When I am contacted by a family or agency to provide services, I describe my background and ask some questions about what specifically they want for their child. Many families report feeling overwhelmed by a diagnosis of autism for their child and may be unsure of what options are available. I provide information about early intervention programs and the most recent research evaluating autism treatments.
If the family is interested, I arrange to meet with them at and observe their child. I ask them to outline their specific concerns about their child and provide me with any assessments from pediatricians, autism assessment teams, speech language pathologists, etc. I then develop a behaviour plan of intervention with specific goals and measurable objectives to address these concerns. The parents review the plan and if they are satisfied with the plan as written, this plan forms the basis for the program for their child. I also have the parents attend a workshop in which I provide additional information about autism, recommended treatment practices and early intervention programs. I demonstrate particular teaching techniques and the parents are given an opportunity to practice these. If the parents have already hired therapists (behaviour interventionists) they attend the workshop as well.
Once the behaviour plan is written, I help the parents set up their program and provide additional training. Phone calls, emails, video conferencing and and even video recordings are often used to help monitor and supervise the program. However these do not take the place of actual meetings with the family, which I conduct several times a year depending on the family’s preferences. I maintain contact with the program on an ongoing basis. If there are particular behaviour problems such as aggression, self-injurious behaviour, or if the child is not making satisfactory progress in some area, I will develop a very specific and detailed intervention plan to address the identified issue. The goals and objectives are somewhat different for each child and individual families. A typical plan would emphasis the development of language, social skills, communication, imitation, following directions, self-care, gross/fine motor skills and academic skills.
All behaviour plans must have measurable outcomes for each objective. If an objective is not being met in a reasonable time frame, then it may be necessary to adapt the teaching strategy. For example, if a child is still only using one word instead of developing 2 or 3 word phrases, and this is a stated objective, then it may be necessary to change the setting events, type of reinforcement, prompting methods or other elements of the teaching strategy.
Positive approaches are used and the least restrictive most effective techniques are always emphasized. The following is a partial list of the specific strategies used: Task analysis, errorless learning, incidental teaching, generalization, immediate reinforcement, both direct and token systems, shaping, fading, prompting, imitation and modeling, forward chaining, backward chaining, total task presentation, pivotal response training, systematic desensitization, exposure and response prevention, extinction, differential reinforcement of other behaviour (DRO), differential reinforcement of low rates of responding (DRL), differential reinforcement of alternative behaviour (DRA), discrete trial methods (intensive teaching with many opportunities for learning), and verbal behaviour strategies, i.e., tact and mand training.
I believe all children have the ability to learn and improve. However children diagnosed with autism need highly specialized teaching techniques. Learning will occur more quickly when effective teaching strategies are used. Each objective has a specific measurable outcome and the child’s initial (pre-treatment) level of performance is directly measured and this is called a baseline measurement. During therapy sessions, the therapist records the accuracy of the child’s performance. This allows the therapist (behaviour interventionist), parents, and the behaviour consultant, to monitor progress and identify areas of difficulty for the child. Periodically, the outcomes identified in the plan are reviewed and compared with the original baseline data to document the child’s rate of progress.
Evidence Based Practice
The teaching strategies that currently have the strongest scientific evidence of effectiveness for children diagnosed with autism are based on applied behaviour analysis (ABA). The logic and rationale for the selection of the particular strategies and techniques that I recommend are based on the widely accepted research findings. Virtually all university level psychology textbooks reference this research and identify ABA based programs as the most effective method currently available for children diagnosed with autism.
Numerous comprehensive and authoritative reviews of autism treatments research have been conducted and all of these reports have confirmed the efficacy of applied behaviour analysis (ABA) in the treatment of autism. The U.S. Surgeon General’s report, The New York State Health Department, The American Academy of Pediatrics and many other governmental, scientific and medical expert panels have strongly recommended the use of ABA in the treatment of autism based on the strong research evidence. In Canada, Ontario recently mandated extensive ABA training for all teachers and staff working in special education programs.
Early intensive behaviour intervention (EIBI) programs are widely accepted as the most effective treatment for autism. Please note the following converging lines of evidence. Anecdotal reports of parents such as Catherine Maurice (Let Me Hear Your Voice), numerous brief single-subject studies, hundreds of long term single-case and small N experiments, and numerous well-controlled long term group comparison studies, several with long term follow-up results. The results are highly consistent.
For example, the original 1987 Lovaas study and the 2005 Sallows study both found that almost half (47% Lovaas, 48% Sallows) of the children who received the early intensive behavioural intervention (EIBI) improved dramatically on all objective measures of academic and social ability. These children now scored in the normal range on IQ tests, measures of adaptive behaviour and were succeeding in regular classrooms without support. The children in the groups that did not receive the EIBI (control and comparison) showed almost no improvement. As the CBC Nature of Things special on autism stated in reference to the Lovaas research, and the EIBI treatments based on it, we now know that there is an effective treatment for autism (see CBC “Autism: The Child Who Couldn’t Play”). They also noted that there was a dramatic lack of ABA treatment services available in Canada.
REFERENCES:
National Autism Center (2015). National Standards Project, Phase 2
http://www.nationalautismcenter.org/national-standards-project/phase-2/
Myers, S.M., & Johnson, C.P. (2007). CLINICAL REPORT: Management of children with autism spectrum disorders, Pediatrics, Vol. 120 No. 5, 1162-1182.
http://pediatrics.aappublications.org/content/120/5/1162.short
Canadian Broadcasting Corporation (1995). Autism: the child who couldn’t play. The Nature of Things with David Suzuki.
Lovaas, O. I. (1987). Behavioral treatment and normal educational and intellectual functioning in young autistic children. Journal of Consulting and Clinical Psychology, 55, 3-9.
Maine Department of Health and Human Services and the Maine Department of Education. (2009). Interventions for autism spectrum disorders: state of the evidence, Report of Children’s Services Evidence Based Practice Advisory Committee, (1-77).
Maurice, C. (1993). Let Me Hear Your Voice: A Family’s Triumph Over Autism.
New York State Department of Health: Division of Family Health: Bureau of Early Intervention. (1999). Autism/pervasive developmental disorders: assessment and intervention for young children (age 0-3 years). Clinical Practice Guideline: Quick Reference Guide for Parents and Professionals, Publication No. 4216, 1-108.
Sallows G.O., & Graupner, T.D. (2005). Intensive behavioral treatment for children with autism: four-year outcome and predictors. American Journal on Mental Retardation. 110, 417–438.